Welcome to Stepping Stones DS

Supporting children and young people with Down Syndrome and their families, one step at a time

Stepping Stones DS supports children and young people with Down Syndrome in North Hampshire, Berkshire and Surrey. The group provides a wide range of support, activities and services for members and their families. All activities are designed to build confidence and support our members in reaching their potential.

We put a high priority on empowerment and provide training for parents, teachers and other professionals to allow them to better support our members. Stepping Stones DS is an entirely volunteer led, self funding organisation. For information on how to join Stepping Stones DS please see our New Parents page

Read More About Us…

Noticeboard

We have recently updated our Training page with our Training Programme for the 2018/19 academic year.  We have a range of topics available and hope that there is something of interest for everyone, please see our Training page to see this online.

Our beautiful publication “Our Stories” is now available to read online. this publication is for members, for families, for professionals, and for anyone who ever wondered what life might be like with an extra chromosome, please see our New Parents page to see this online.

You can now sign up for our half termly newsletter using the form in the footer of our website

VOLUNTEER LED

Stepping Stones DS is a run by parents, for parents and carers of children and young people with Down Syndrome. We are an entirely volunteer led group and would love to hear from you if you would like to support us.

Find out how you can help support us …

About

New Parents

Activities

Training

Latest from Facebook

11 hours ago

Stepping Stones DS

This week we've been sharing photos, blogs, posts and videos from and featuring our members. Today make yourself a cuppa and sit down and watch this fabulous programme, "My Life - Breaking Free" starring our very own Nicole, which was filmed in 2012.This is "MyLife: BREAKING FREE" by Ollie Knocker on Vimeo, the home for high quality videos and the people who love them. ... See MoreSee Less

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22 hours ago

Stepping Stones DS

Meet Chloe....We would like to celebrate our beautiful Chloe on World Down Syndrome day....
Chloe is 4 years old and is Down syndrome. She starts mainstream school this September 2019.

Chloe is very funny, dogmatic, determined and very charming (when it suits her). She adores her sister Hannah, and wants to do everything she does. Which mostly Hannah enjoys! Perhaps not when it involves breaking up her laboriously made lego. Chloe loves horse riding, which we do with the amazing RDA in Cranleigh, being outside and role play. She also adores Mr Tumble, which has got us through potty training, and is very loyal to her friends. Going anywhere with Chloe is a very slow process as she loves meeting people and will engage with everyone and share a story and a smile.

Chloe has very low muscle tone which makes all sorts of things harder for her - gross motor skills, fine motor skills - just moving about takes so much of her energy and is very tiring. It has also meant that sitting, walking and those milestones took longer to reach. Chloe uses a combination of Makaton (sign language) and simple words and speech, which is behind a typical 4 year old, but she is very able at getting her views across. Chloe needs help with understanding social boundaries and cues, clear signposts and instructions and being determined can mean that she doesn’t always listen to her Mother!!!

Before Chloe arrived (post natal diagnosis) we knew very little about Down syndrome. Most of what we did know was a stereotype, and does not reflect the modern world.

Life is different, and we have had to adjust. It’s sometimes more complicated. Milestones do take longer - but we get there. We do have a lot more appointments. But Chloe is having a ball. She makes our hearts sing. And she will do ( and is doing) great things.

She can do that because there is so much research into Down syndrome and the early interventions that can help Chloe. She can do that because we have been seeing Anel (Children In Motion) since Chloe was 3 months old. She can do that because we are supported by some amazing local charities that pick up the therapies that the NHS can’t provide due to cutbacks. Chloe will achieve her full potential and we can’t wait to see what that will be.

Today is World Down syndrome day - and we have been rocking our odd socks with our friends. We want to celebrate Chloe and all those with Down syndrome.
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22 hours ago

Stepping Stones DS

Thanks for you support Sandy Lane :-)We have raised an amazing £221 for World Down Syndrome Day! Thank you for your ongoing support - we really do appreciate it as will Stepping Stones when they receive this donation. ... See MoreSee Less

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Thanks to James, Florence's Dad, for sharing this piece he wrote for The Wellspring Community Newsletter. ... See MoreSee Less

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1 day ago

Stepping Stones DS

Check out this gorgeous pair, of Stepping Stones DS buddies, Gemma and Brogan, BFF!

DS. The BIG Picture
DS the BIGGER Picture, a short series of videos. Growing up - Gemma & Brogan

#wdsd19 #leavenoonebehind #lotsofsocks #WDSD #WorldDownsSyndromeDay #trisomy21 #DownsSyndromeAwareness #ExtraChromosome #LosetheLabel #MorethanMedical #PADSG Dsi Campaign Down's Syndrome Association Lose the Label @Bobbie Ambrose Debbie Steele
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1 day ago

Stepping Stones DS

Check out this fabulous video featuring Nicole, one of teenage members.

DS. The BIG Picture
DS the BIGGER Picture, a short series of videos. Growing up - Nicole

#wdsd19 #leavenoonebehind #lotsofsocks #WDSD #WorldDownsSyndromeDay #trisomy21 #DownsSyndromeAwareness #ExtraChromosome #LosetheLabel #MorethanMedical #PADSG Dsi Campaign Down's Syndrome Association Lose the Label Charlie Williams
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On World Down Syndrome Day 2019 - the fundraising stories and funky sock photos just keep on coming!

A HUGE thank you to Sam, mum of Henry, for her update today;

"I just wanted to share some fantastic news; today at work we held a cake sale and tombola to raise funds. We have raised a total of £324 for Stepping Stones DS. My company will also match up to £150 if my application is successful, bringing in a grand total of £474.

I am so honoured and touched by the massive contributions and participation my friends and colleagues have made and hope that events and celebrations of our children will start to educate and challenge perceptions."

#rockyoursocks #lotsofsocks #WDSD19 #LeaveNoOneBehind
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